TRIO- Long Island
Chapter PO Box 81 Garden City, NY 11530 www.litrio.org 516-942-4940
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to Transplant Recipients Discussion
Transplant
Recipients and Food Safety- at LITRIO.org
Our
LI TRIO meetings begin at 7:30PM and are held at
145 Community Dr., Manhasset, NY.
April
wasNational Donate Life Month
Gift
Of Life Celebrations at the North Shore-LIJ Health System
These
inspiring events served as a reminder of the critical
need for more organ, tissue, bone marrow and blood donors.
Southside
Hospital, Bayshore- March 31 10:30 AM to 2 PM
:
Huntington
Hospital - Reception- April 3, 2008- great event!
Other
events:
North
Shore University Hospital April 10 11 AM to12 noon-
Rust Auditorium
Harborfield High School LI TRIO Educational
Program
and Flag Raising
7:45 AM – 11:45 AM
Staten Island University Hospital April 8 10 to 11AM
LIJ Medical Center April 9 12 noon to 1 p.m.- Teaching
Center
Forest
Hills Hospital April 17 10:30 AM to 2:30 PM
Franklin
Hospital, Valley
Stream April
14 10:30 AM to 2 PM
Donate
Life Walk at Stony Brook University
Wednesday, April 23rd, 2008
Time: 12:50PM
At Student Activities Center (SAC) plazaa
Our
sister chapter-TRIO
Manhattan’s Remember and Rejoice Ceremony was
held on
Saturday, April 5, 2008, at St. Patrick's Cathedral,
5th Ave & 50th Street, Manhattan, New York, from
2:00 until 3:30 PM.
ALF
Greater New York Chapter-Transplantation Re-Birthday
Party was held on April 12th at Winthrop Hospital
TO
SEND A DONATION to Long Island TRIO
Please make your check payable to Long Island TRIO and
send it to:
Long Island TRIO
Attention Website Donations -PO Box 81 Garden City NY
11530
We are 503c member driven all volunteer not for profit
organization. Your generouscontribution is tax deductable
to the extent allowed by law and will support the organ
donor awareness programs and activities you see on these
pages.
To
register for medicare web seminars seminar:
Please visit our meetings page
“Drug Interaction With Immunosuppressives”
Dr. Larry Chodoff,
More
United
Network for Organ Sharing.
Policy Proposal Issued for Public Comment
Comment
now!
The
LI TRIO Singers
will be performing at the Long Island Ducks game
on August 11, 2008.
Shea
Stadium July 22, 2008- check back soon for more
details on this exciting event.
LI
TRIO's Organ Donation Awareness Night at Shea
Stadium
Senator
Kemp Hannon and Long Island TRIO Joint Press Conference:
“This
Valentine’s Day- Give Life”
NYS Senator Kemp Hannon and Long Island TRIO held a
joint press conference on Valentine's Day- February
14, in order to educate the public about organ donation,
correct donation misconceptions and create a greater
willingness to donate. Television and radio stations
aired the press conference in cycles all day and evening
on February 14 and 15, 2008.
Senator Kemp Hannon explained the importance of choosing
to be an organ donor and how New York State is working
to insure that the courageous decision to be a donor
is respected and honored.
“Long Island TRIO is committed to improving the
quality of lives touched by
the miracle of transplantation through support, advocacy,
education and
organ donation awareness," said Mike Sosna, president
of LI TRIO noting
that the group consists of transplant recipients, living
donors, donor
families, transplant candidates, professionals and caregivers.
I am honored to be among Long Island TRIO volunteers
who are continuing and expanding the tradition, goals
and the mission of our organization. This mission includes
promoting the importance of and need for organ donation.
With almost 9,000 New Yorkers and 98,049 Americans on
the waiting
list to receive a life-saving organ transplant, we trust
that our volunteer efforts together with the implementation
of recently signed laws in New York State will increase
activity and registrations with respect to New York
State’s “Donate Life Registry”.
Our all-volunteer organization is pleased to provide
information and answers to any and all questions with
respect to organ donation
and the New York State “Donate Life Registry”.
You can find additional
information by pointing your browser to our website
at www.litrio.org.”Michael Sosna continues- “Each
day, about 77 people nationwide will receive “The
Gift Of Life”; an organ transplant, but sadly,
19 others will die while waiting for a transplant.
One
person who donates organs can save up to 7 lives, while
a tissue
donor can improve 12 or more lives including actually
restoring eyesight.
New York State’s new driver’s licenses will
prominently display (on the
front of the document) one’s “consent”
to being an organ donor and it is
highly recommended and essential that we all discuss
our consent decision with our
families and next of kin.”
The Tietjen’s were presented as an affectionate,
happy and healthy Valentine’s day couple as they
spoke to reporters and
George Tietjen had no shortage of smiles and laughter
as he added:
"Happy Valentine's Day! This is the day every year
that we celebrate love. But for me, I celebrate love
every year on August 23. That is the day in 2001 when
my wife gave a special gift of love to me - one of her
kidneys. I was seriously ill with kidney failure and
was told by my physicians that it was time to think
about dialysis and/or a transplant. In New York State
there was, and is a 7 to 8 year wait for a kidney.”
Sue Tietjen was beaming and stated that “I'm happy
that I could do something to eliminate the need for
a 7-8 year wait, and give my Valentine back his normal
life!" Sue and George Tietjen were also interviewed
by local and regional media outlets including CBS News
88 as well as News 12 and WLNY. Sue and George Tietjen
are also Long Island Transplant Recipients International
Organization volunteers.
George Tietjen added that he was “ fortunate that
my wife was a match for me and I didn't have to wait.
Others who are currently on the waiting list are fortunate
that Sen. Kemp Hannon had a plan that may shorten their
wait. Because of his and other New York State legislators’
initiatives, if you choose to be a donor, joining the
New York State “Donate Life Registry” registers
your consent to be an organ donor. As this new law is
implemented in New York State, your consent will be
considered primary and given the serious weight it deserves.
New York State is now a leader in this cause and an
example to so many other states.”
Michael Sosna added that “Senator Hannon sponsored
a New York State bill (that was signed into law) that
provides for an opportunity to make a voluntary contribution
to the "Life- Pass It On” Trust Fund to support
organ and tissue donation education and awareness. LI
TRIO believes that education and awareness efforts will
go a long way in saving lives.”
LI TRIO volunteers Tom Bush, Ed Burki, Iris Edelson
and Joseph Dioguardi were also on hand speaking to reporters
for this media event.
To join the New York State “Donate Life Registry”
point your browser to www.litrio.org.
Get
Game Give Life" at Madison Square Garden
LI
TRIO volunteers also participated in "Get Game
Give Life" at Madison Square Garden where St. John's
played Marquette on February 21, 2008. We were pleased
to help spread the word about the importance of organ
donation. Special thanks to all of the Long Island TRIO
volunteers, Dr. Lewis Teperman, Jack Powers, Kathryn
Dwyer and NYODN staff members.
Special thanks to the many LI TRIO members who volunteered
for this event and we will be participating in more
events like this in the future. LI TRIO volunteers distributed
materials, took care of information tables, and were
on center court at half time helping to deliver the
message that “Organ Donation and Transplantation”
works. We also represented the 98,049 Americans waiting
for “The Gift Of Life” as Dr. Teperman spoke
about the importance of organ donation and the New York
State Donate Life Registry, which is now a registry
of consent as opposed to a registry of intent. Once
again Madison Square Garden shined bright with green
bracelets on thousands of fans and the large public
address system delivered the important message that
Transplantation Works” and that “Organ and
Tissue Donation Saves Lives”.
LI
TRIO's Holiday Party
Transplant
Recipients International Organization-
Long Island Chapter
PO Box 81 Garden City, NY 11530
Tel: 516.902.8111
Email: mike@sosproductions.com
Website: www.LITRIO.org
An open letter from Mike Sosna:
I
would like to invite you to our Annual Re-dedication
of our Donor Rose Garden in
Eisenhower Park on September 13, 2008 at 12 Noon.
I’m also pleased to report on 2007's Re-dedication
of our Donor Rose Garden in
Eisenhower Park. LI TRIO has adopted our area of Eisenhower
Park The garden is maintained exclusively by the hard
working volunteers at Long Island TRIO.
Many recipients were thrilled and very lucky to thank
Long Island and New York Donor Families for creating
a
brighter tomorrow and for giving the gift of life at
a most difficult time in their
lives. Donors and Donor families are indeed our heroes.
They are lifesaving heroes
who have shared life.
LI TRIO and NYODN honored and thanked Donors and Donor
Families as we Re-dedicated our LI TRIO Donor Rose Garden
in a ceremony held on September 8, 2007 and we are pleased
that we had the largest attendance and largest representation
of our honorees; our Donor Families who attended the
event this year.
Lunch was served and we had 22 extra large picnic tables,
large tents, incredibly beautiful weather and an atmosphere
of generousity and thanks.
This event honored donors and donor families. The ceremony
featured guests and speakers from members of the Nassau
County Legislature, New York State Assemblyman Jim Conte,
LI TRIO
Transplant Recipients and Volunteers, Julia Rivera from
NYODN, and members and staff of other healthcare organizations.
We were pleased to have Barbara Musto, Donor Mom- speak
about organ donation and share her personal account
as well as her experiences with Donor Families and Transplant
Recipients. Barbara has reported that she has heard
a great deal of positive feedback about this year's
special event and that she has been told that the Donor
Families appreciated it very much.
With
warm regards,
Mike
Sosna, President
Directions
to the LI TRIO Donor Rose Garden
Going
East, North Shore:
LI Expressway or Northern State Parkway East to The
Meadowbrook Pkwy, South to Exit M5, Hempstead Tpke,
East Meadow/Farmingdale. Hempstead Tpke towards East
Meadow to Entrance of Park. Enter Park and go to Parking
Field 6A. The garden is next to the Building where the
“Women’s Sports Foundation” is housed.
(Old Brick Building)
Going East, South Shore:
Southern State Pkwy East to The Meadowbrook Pkwy, North,
to Exit M5, Hempstead Tpke, East Meadow/Farmingdale.
Hempstead Tpke towards East Meadow to Entrance of Park.
Enter Park and go to Parking Field 6A. The garden is
next to the Building where the “Women’s
Sports Foundation” is housed. (Old Brick Building)
Going West, North Shore:
Northern State Pkwy West to The Meadowbrook Pkwy, South,
to Exit M5, Hempstead Tpke, East Meadow/Farmingdale.
Hempstead Tpke towards East Meadow to Entrance of Park.
Enter Park and go to Parking Field 6A. The garden is
next to the Building where the “Women’s
Sports Foundation” is housed. (Old Brick Building)
Going West, South Shore:
Southern State Pkwy West to The Meadowbrook Pkwy, North,
to Exit M5, Hempstead Tpke, East Meadow/Farmingdale.
Hempstead Tpke towards East Meadow to Entrance of Park.
Enter Park and go to Parking Field 6A. The garden is
next to the Building where the “Women’s
Sports Foundation” is housed. (Old Brick Building).
Download
our monthly LI TRIO Update Newsletter
Download our monthly
LI TRIO Update Newsletter
If
you do not have Acrobat Reader, Click
here to download it for free.
August
11, 2008- The TRIO Singers are performing The
National Anthem at the Long Island Ducks baseball
game. Save the Date! All TRIO members and interested
parties are welcome to join us at the game.
Senator Kemp Hannon and Long Island
TRIO held a joint press conference on Valentine's
Day- February 14, 2008
A
Letter from Senator Hillary Clinton to LI TRIO
Gov.
Schwarzenegger Highlights Importance of Life-Saving
Organ and Tissue Donation in California
Long
Island TRIO In The News:
This
article appeared in Suffolk Life on April 16,
2008
TRIO
is represented by the Tree of Life. With
its intertwining branches, the Tree of Life
symbolizes the intertwining of the lives
of two human beings, the donor and the recipient,through
the Gift of Life. It depicts growth and
new life and reinforces the new beginning
transplantation gives to the recipient.
Organ
Donation Night At Shea Stadium with the Long Island TRIO Singers
performing our nation's National Anthem at the Mets game.
New York Mets vs Phils.
SAVE THE DATE:
September
13, 2008
You
are invited to join us at Our Annual LI TRIO Donor Rose Garden
Ceremony Honoring Donors and Donor Families.
Enroll
in The New York State Organ and Tissue Donor Registry
Meetings:
145 Community Drive, Manhasset
Directions
to the meeting location are here
To
send a donation to Long Island TRIO
Long
Island Chapter- Mission
Visit
our Transplant News Page as well:
Visit
our TRIO Events Page
Please
check out the upcoming events page:
More
LI TRIO Links
Enroll
In The The New York State Organ and Tissue Donor Registry
Long
Island TRIO- Mission
Donor
Awareness
Support
Education
Advocacy
TRIO
Long Island Chapter PO Box 81 Garden City, NY 11530 www.litrio.org
516-942-4940